April 24, 2008

Gattaca: The Unbearably Light Burden of Imperfection

By Paul Marchbanks

Recent Entries in Sci-Fi / Fantasy

"'There is a fatality about all physical and intellectual distinction . . .'"
(Oscar Wilde's The Picture of Dorian Gray, 1890)

The advent of blu-ray is providing a wonderful excuse to revisit old favorites. First up, a sci-fi favorite I've used regularly when teaching disability issues in the classroom . . .

Gattaca_pm.jpgNiccol's screenplay spins the standard underdog story in enough new directions to make us care what happens to Ethan Hawke's bold and beautiful Vincent Freeman, but the more interesting character journey is undertaken by Jude Law's crippled Jerome Morrow. What happens to an individual engineered to perfection who has been trained from childhood to believe he will always succeed, when that capacity to win violently vanishes? Jerome's unsuccessful attempt at suicide in the wake of earning a silver, second-place medal in swimming crushes his legs but fails to squash a resilient depression produced by a perfectionist society unwilling to value effort, only victory.

Jerome's proves an ultimately fatal posture towards life, a stance adopted by many across time who have convinced themselves that social or personal perfection will, some day, be attained by human efforts. We demand that our politicians, televangelists, and philanthropists spout such humanistic optimism, and decry those willing to suggest that they--and their constituents--are not only needy but intrinsically defective. We prefer circulating a lie that, in the short run, turns us from recognition of our own brokenness, a lie that will ultimately turn us too from the saving hand of a Creator who holds the patent on perfection.

This is not to deny that we were created to improve ourselves: success stories like that of the aptly named Vincent Freeman rightly inspire us to freely, courageously strive towards that which appears to have been placed out of reach by circumstance. In straining towards success and the attendant illusion of lasting happiness, however, we must place our final hope in divine Grace instead of our own efforts. As noted by the Andrea del Sarto of Robert Browning's imaginings, "a man's reach should exceed his grasp, / Or what's a heaven for?"

Posted by Paul Marchbanks at April 24, 2008 12:11 PM

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Check this out! Sci-fi prefigures real life

http://www.nytimes.com/2008/05/02/health/policy/02gene.html?hp

Congress Passes Bill to Bar Bias Based on Genes


By AMY HARMON
Published: May 2, 2008

A bill that would prohibit discrimination by health insurers and employers based on the information that people carry in their genes won final approval in Congress on Thursday by an overwhelming vote.
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The legislation, which President Bush has indicated he will sign, speaks both to the mounting hope that genetic research may greatly improve health care and the fear of a dystopia in which people's own DNA could be turned against them.

On the House floor on Thursday, Democrats and Republicans alike cited anecdotes and polls illustrating that people feel they should not be penalized because they happened to be born at higher risk for a given disease.

"People know we all have bad genes, and we are all potential victims of genetic discrimination," said Representative Louise M. Slaughter, Democrat of New York, who first proposed the legislation. The measure passed the House on Thursday by a 414-to-1 vote, and the Senate by 95-to-0 a week earlier.

If the bill is signed into law, more people are expected to take advantage of genetic testing and to participate in genetic research. Still, some experts said people should think twice before revealing their genetic information.

Doctors say a fear of discrimination on the part of patients has prevented thousands at risk of genetic disease from taking advantage of tests that might help them make better health care choices. Some patients worry that they may be denied jobs or face higher insurance premiums if a genetic red flag shows up in their medical records.

Posted by: Paul M. at May 2, 2008 12:45 AM

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